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vom Weltverband IFF

Breaking News: 1 Mio.$ Spenden in 2017

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Unglaubliche 1 Millionen Dollar konnten wir im Jahr 2017 sammeln!

Es klingt unwirklich, fast zu schön – aber im Jahr 2017 konnten wir über diverse Spendenaufrufe die unglaubliche Summe von 1. Mio $ von unseren Spendern erhalten. Diese Gelder werden zur gezielten Forschung am FoxG1 Syndrom sowie anderer genetisch bedingter Krankheitsbilder  verwendet. Die internationale Spendenplattform www.foxg1research.org (ehemals curefoxg1.com) vermeldet folgendes:

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Wow… We have raised ONE MILLION DOLLARS for FOXG1 Research in just a few months in 2017! This marks the first million dollars of our seven million dollar goal to get us to clinical trials!!

Thanks to all generous donors, we are able to fund every project in Phase One of our Path To A Cure strategy! With more to come.

Thank you to all the FOXG1 parents who have worked so hard to make this come true. Thank you friends, families, companies. Thank you to the BLACKSWAN Foundation for taking us under your wing. Thank you all for believing in us, in our strategy, our team, our dedication, and our choices.

We are so inspired to forge ahead to find a cure for FOXG1 Syndrome and related-brain disorders. We are confident, with the help of our brilliant Scientific Advisory Board and our renowned researchers dedicated to understanding FOXG1 and applying genetic therapies, we will find ways of alleviating symptoms in our children in the next 3-5 years.

Stay tuned for information on new projects we are funding and on our progress.

In 2018-2019 we will take our projects to the next level with the goal to see our children into clinical trials. We have a lot of work ahead of us and welcome all the support and help on this incredible journey.

FOXG1 Research Survey Opportunity

von | vom Weltverband IFF

Hi friends- I recently asked for your participation in a survey that I am conducting with parents and caregivers of individuals living with FOXG1 Syndrome. I am asking all of you to complete a set of online questionnaires concerning anxiety, stress, and coping.

This set of questionnaires should take you approximately 20 – 25 minutes to complete. If you have already completed this survey, I appreciate your participation! If you have not responded to this survey, I encourage you to take a few minutes and complete the survey.

Don’t forget, for every completed survey I will donate a dollar to the International FOXG1 Foundation.

Please click the link below to go to the survey website (or copy and paste the survey link into your internet browser) and then enter the personal access code to begin the survey.

Your response is important and your answers are confidential. Getting direct input from parents regarding this topic will help guide the development of research on this topic. Thank you for your assistance in this study!

 

Heather Norwood
Executive Director
International FOXG1 Foundation
foxg1.org
(413) 214-4192

Families United For a Cure